Logo-jnp
J Nephropathol. 2017;6(3): 130-133.
doi: 10.15171/jnp.2017.22
PMID: 28975091
PMCID: PMC5607972
Scopus ID: 85019959152
  Abstract View: 4160
  PDF Download: 2209

Case Report

Fabry disease; early diagnosis improves prognosis but diagnosis is often delayed

Jagadish Jamboti 1,2*, Cynthia H Forrest 2,3

1 Department of Renal Medicine, Fremantle Hospital, Fremantle, Western Australia
2 University of Western Australia, Crawley, Perth, Australia
3 Department of Anatomical Pathology, Path West Laboratory Medicine, Fremantle Hospital, Fremantle, Western Australia
*Corresponding Author: *Corresponding author: Jagadish Jamboti, FRACP, Department of Renal Medicine, Fremantle Hospital, Fremantle, Western Australia, Australia. , Email: drjagadishjamboti@gmail.com

Abstract

Background: Fabry disease (FD) is a rare X-linked deficiency of lysosomal enzyme alpha-galactosidase (AGAL) resulting in accumulation of globotriaosylceramide (Gb-3) in the cells, with protean manifestations. Major organs affected are the kidneys, heart and nervous system. The diagnosis of FD is often delayed by many years. Enzyme replacement started early might reverse the organ damage while delayed initiation may only stabilize the disease progression.

Case Presentation: We describe a patient in whom involvement of different organs unfolded at different times and a detailed review of history by the clinician led to the diagnosis. The importance of electron microscopy (EM) of renal biopsy is highlighted.

Conclusions: Patients with FD are often diagnosed late because the manifestations can be variable and spread over different time periods. Detailed history including family history and examining the renal biopsy by EM are crucial for early diagnosis.


Implication for health policy/practice/research/medical education:

The diagnosis of  Fabry disease  may be delayed because of its rare occurrence and varied manifestations. Appropriate diagnostic work up is highlighted in this case report.

Please cite this paper as: Jamboti J, Forrest CH. Fabry Disease; early diagnosis improves prognosis but diagnosis is often delayed. J Nephropathol. 2017;6(3):130-133. DOI: 10.15171/jnp.2017.22.

First Name
Last Name
Email Address
Comments
Security code


Abstract View: 4161

Your browser does not support the canvas element.


PDF Download: 2209

Your browser does not support the canvas element.

ePublished: 05 Feb 2017
EndNote EndNote

(Enw Format - Win & Mac)

BibTeX BibTeX

(Bib Format - Win & Mac)

Bookends Bookends

(Ris Format - Mac only)

EasyBib EasyBib

(Ris Format - Win & Mac)

Medlars Medlars

(Txt Format - Win & Mac)

Mendeley Web Mendeley Web
Mendeley Mendeley

(Ris Format - Win & Mac)

Papers Papers

(Ris Format - Win & Mac)

ProCite ProCite

(Ris Format - Win & Mac)

Reference Manager Reference Manager

(Ris Format - Win only)

Refworks Refworks

(Refworks Format - Win & Mac)

Zotero Zotero

(Ris Format - Firefox Plugin)